#53 From Journalist to Advocate: Laura Bonnell’s Mission to Support Cystic Fibrosis Families
Parent Laura Bonnell shares about her two daughters who were diagnosed with cystic fibrosis which lead to her advocacy.
#52 Adaptive Toys for Kids with Disabilities: Inspiration from Daughter with Rett Syndrome
Podcaster, Father and Advocate shares about his daughter and how he created adaptive toys and products for others in the disability community.
#51 Niemann-Pick Type C: Understanding Symptoms, Genetics, and New Treatments
Patient advocate and parent Barbara Lazarus shares about her son’s condition and their doctor, Dr. Caroline Hastings, provides her expertise.
#30 Rare Disease Advocacy with Wes Michael
Celebrate Rare Disease month in this episode with the President and Founder of Rare Patient Voice.